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Alportsyndrome.org lookup results from whois.names4ever.com server:
- Domain created: 2006-01-14T18:06:31Z
- Domain updated: 2024-01-19T01:28:43Z
- Domain expires: 2025-01-14T18:06:31Z 0 Years, 269 Days left
- Website age: 18 Years, 96 Days
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- inetnum : 172.64.0.0 - 172.71.255.255
- name : CLOUDFLARENET
- handle : NET-172-64-0-0-1
- status : Direct Allocation
- created : 2010-07-09
- changed : 2021-07-01
- desc : All Cloudflare abuse reporting can be done via https://www.cloudflare.com/abuse
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- handle : CLOUD14
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- IP address: 172.67.130.53
- Location: United States
- Latitude: 37.751
- Longitude: -97.822
- Timezone: America/Chicago
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Websites Listing
We found Websites Listing below when search with alportsyndrome.org on Search Engine
Alport Syndrome Patient Profiles
Alport syndrome Case 1 52-year-old Woman Presentation Middle Eastern woman SCr 2.5 (eGFR 30) Has 2 children and 2 siblings Comorbidities Obesity, hypertension, type 2 diabetes mellitus Family History Both mother and father have CKD (stage 3) Aunt in the Middle East always had blood in urine Diagnosis Patient was screened for Alport syndrome
Alportsyndrome.comThe 2022 International Workshop on Alport Syndrome
Welcome to The 2022 International workshop on Alport Syndrome. The hybrid event takes place on Wednesday 7 September 2022 in Calgary, Canadaand is also online for those who cannot attend in person. The workshop is a pre-meeting to the 19th IPNA Congress, Calgary, Canada. This workshop will spotlight the latest developments in Alport Syndrome.
Alportsyndromealliance.orgAlport syndrome: MedlinePlus Genetics
Alport syndrome is a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. People with Alport syndrome experience progressive loss of kidney function. Almost all affected individuals have blood in their urine (hematuria), …
Medlineplus.govAlport syndrome - About the Disease - Genetic and Rare …
Alport syndrome - About the Disease - Genetic and Rare Diseases Information Center We recently launched the new GARD website and are still developing specific pages. This page is currently unavailable. If you need help finding information about a disease, please Contact Us.
Rarediseases.info.nih.govAlport Syndrome Life Expectancy
Alport syndrome is a hereditary disease that typically affects the production of type IV collagen, a protein responsible for maintaining kidney function and for …
Alportsyndromenews.comAlport syndrome - Wikipedia
Alport syndrome is a genetic disorder [1] affecting around 1 in 5,000-10,000 children, [2] characterized by glomerulonephritis, end-stage kidney disease, and hearing loss. [3] Alport syndrome can also affect the eyes, though the changes do not usually affect vision, except when changes to the lens occur in later life. Blood in urine is universal.
En.wikipedia.orgAlport Syndrome – American Kidney Fund (AKF)
2021-10-29 · October 29, 2021. Alport syndrome is a genetic disease. This means that people with Alport syndrome are born with it. It is caused by problems with three genes that control the way certain parts of your body are shaped. When there are problems with these genes, parts of your kidneys, ears and eyes do not grow correctly.
Kidneyfund.orgHelp Mathew Albanese Conquer Alport Syndrome
Recently Mathew was diagnosed with Alport Syndrome. Alport Syndrome is a genetic condition characterized by kidney disease, hearing loss, and eye abnormalities. People with Alport syndrome experience progressive loss of kidney function. There is no cure for Alport syndrome at this time. We are seeking donations to help the Albanese family ...
Gofundme.comAlport Syndrome Foundation - NORD (National Organization for …
The Alport Syndrome Foundation (ASF) is a voluntary, non-profit organization whose mission is to educate and support patients and families that have been affected by this genetic kidney disease with the goal of funding research to find more effective treatment protocols and a cure.
Rarediseases.orgQu'est-ce que le syndrome d'Alport? - Hear-it.org
Le syndrome d'Alport est caractérisé par un déclin progressif des fonctions rénales et auditives. Une personne sur 5.000 naît avec ce syndrome, principalement les hommes. Le syndrome d'Alport est une forme de néphropathie héréditaire (inflammation rénale), typiquement développée à un âge jeune et particulièrement chez les hommes.
Hear-it.orgAlport Syndrome Foundation, Inc. in Bedford, NH | Company Info
Alport Syndrome Foundation, Inc. is a New Hampshire Foreign Non-Profit Corporation filed On April 23, 2012. The company's filing status is listed as Admin. Suspension and its File Number is 669844. The Registered Agent on file for this company is Clutter, Colby and is …
Bizapedia.comAlport-Syndrome
Because Alport syndrome affects the kidneys, people living with the condition experience gradual loss of kidney function. This may lead to end-stage kidney disease that requires dialysis or kidney transplant. Other symptoms, such as loss of hearing and vision, can …
Alportstudy.comAlport Syndrome Foundation | Kindful
Alport Syndrome Foundation | Kindful About Alport Syndrome Foundation YOUR GIFT: Thank you for supporting Alport Syndrome Foundation’s mission of improving the lives of those affected by Alport syndrome through education, empowerment, advocacy, and research. Choose a pre-selected amount, or enter a gift of any size.
Alportsyndrome.kindful.comRegistration - The 2021 online International Workshop on Alport …
The 2021 online International workshop on Alport Syndrome has now finished. If you wish to participate in discussions about Alport syndrome on Slack and receive regular communications about upcoming workshops from Alport UK please join the mailing list here: Join mailing list The activities of the Alport Syndrome Alliance, such as this workshop, are currently delivered by Alport UK until the ...
Alportsyndromealliance.org[PDF] [The Alport syndrome]. | Semantic Scholar
People with Alport syndrome experience progressive loss of kidney function and develop high levels of protein in their urine, resulting in end-stage renal disease (ESRD). People with Alport syndrome experience progressive loss of kidney function. Almost all affected individuals have blood in their urine (hematuria), which indicates abnormal functioning of the kidneys.
Semanticscholar.orgAlport Syndrome Foundation | Kindful
Membership with Alport Syndrome Foundation is free. Members get connected by receiving monthly e-newsletters and occasional emails with updated information about research, the patient community, clinical trial updates, events, patient and family meetings, ASF programs and services, and more. Your membership information is confidential.
Alportsyndrome.kindful.comAlport syndrome causes, symptoms, diagnosis, prognosis
Alport syndrome is a rare inherited disease characterized by kidney disease, hearing loss, and eye abnormalities 1). People with Alport syndrome experience progressive loss of kidney function. Almost all affected individuals have blood in their urine (hematuria), …
Healthjade.comAlport Syndrome Foundation of USA - Home - Facebook
Alport Syndrome Foundation of USA, Scottsdale, Arizona. 4,763 likes · 26 were here. The Alport Syndrome Foundation on Facebook is designed for patients and …
Facebook.comAlport's Syndrome | National Kidney Federation
Alport's Syndrome. If you would like to discuss your kidney diagnosis with our trained members of staff ring the free to call number 0800 169 0936. The Helpline is open Mon-Fri 9am to 5pm. Or you can E-mail us [email protected].
Kidney.org.ukAlport syndrome: MedlinePlus Medical Encyclopedia
2022-04-01 · Alport syndrome also leads to eye problems, including: Abnormal shape of the lens (anterior lenticonus), which can lead to a slow decline in vision as well as cataracts. Corneal erosion in which there is loss of the outer layer of the covering of the eyeball, leading to pain, itching, or redness of the eye, or blurred vision. Abnormal coloring of the retina, a condition called dot-and-fleck ...
Medscape.railpage.com.au
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