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Euro-wabb.org lookup results from http://whois.gandi.net server:
- Domain created: 2011-01-31T11:14:29Z
- Domain updated: 2023-06-03T03:08:29Z
- Domain expires: 2027-01-31T11:14:29Z 2 Years, 289 Days left
- Website age: 13 Years, 75 Days
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- Registrar Url: http://www.gandi.net
- Registrar WHOIS Server: http://whois.gandi.net
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +33.170377661
- Name server:
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Host Informations
- IP address: 212.124.194.161
- Location: United Kingdom
- Latitude: 51.4964
- Longitude: -0.1224
- Timezone: Europe/London
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Websites Listing
We found Websites Listing below when search with euro-wabb.org on Search Engine
EuroWABB Registry
2022-06-14 · Euro-WABB The EURO-WABB Project is a collaboration of doctors, scientists and patient support groups from all over Europe. Within the EU Health Programme 2008-2013 and its call for promoting health through the creation of new registers for rare diseases, EURO-WABB is supported by The EU Directorate General for Health and Consumers (DG-SANCO) via its …
Registry.euro-wabb.orgweb38.2020media.com
Web38.2020media.com ... 2020media.com
Euro-wabb.orgEuro-wabb
We realised that the European Union was unlikely to invest in a project for just one rare disease, so decided to apply for funds to set up well characterised cohorts of patients from several rare diseases. The grant application was submitted in March 2010, with the excellent help of Amy Farmer, project manager; and we were successful, starting the project in January 2011.
Euro-wabb-blog.tumblr.comEURO-WABB: an EU rare diseases registry for Wolfram syndrome, …
Methods: EURO-WABB is an international multicenter large-scale observational study capturing longitudinal clinical and outcome data for patients with WABB diagnoses. Three hundred participants will be recruited over 3 years from different sites throughout Europe. Comprehensive clinical, genetic and patient experience data will be collated into an anonymized disease …
Pubmed.ncbi.nlm.nih.govEURO-WABB: an EU rare diseases registry for Wolfram ... - Europe …
2013-08-27 · EURO-WABB is an international multicenter large-scale observational study capturing longitudinal clinical and outcome data for patients with WABB diagnoses. Three hundred participants will be recruited over 3 years from different sites throughout Europe. Comprehensive clinical, genetic and patient experience data will be collated into an ...
Europepmc.orgEuro-wabb, The EURO-WABB rare disease website
The EURO-WABB rare disease website » This is the website of our EU funded project to set up a Europe-wide registry for Wolfram, Alstrom, Bardet Biedl and other rare diabetes syndromes. Posted 10 years ago
Euro-wabb-blog.tumblr.comhttp://www.euro-wabb.org: an EU Register for Alstrom, Bardet
2012-11-16 · Authors and Affiliations. University of Birmingham, UK. T Barrett. Birmingham Children's Hospital, UK. A Farmer. INSERM, France. S Aymé. University of Padova, Italy
Ciliajournal.biomedcentral.comEURO-WABB - Result
EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alström syndrome and Bardet-Biedl syndrome Research output : Contribution to journal › Letter › Research › …
Research.ku.dkeuro hacking
Euro-wabb-blog1. 1.5M ratings 277k ratings See, that’s what the app is perfect for. Sounds perfect Wahhhh, I don’t wanna. euro hacking. Hacking Facebook Now. Just for this to work, you have to have the login information for the email profile of almost any specific Facebook account. Once you have the email login, you may ask to find a password reset and then use it to totally …
Euro-wabb-blog1.tumblr.comEURO-WABB - Result
EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alström syndrome and Bardet-Biedl syndrome. Research output: Contribution to journal › Letter › Research › peer-review
Research.ku.dkEURO-WABB: an EU rare diseases registry for Wolfram syndrome, …
EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alström syndrome and Bardet-Biedl syndrome. BMC Pediatrics, 2013. Pietro Maffei. Timothy Barrett. Kay Parkinson. Download Download PDF. Full PDF Package Download Full PDF Package. This Paper. A short summary of this paper. 36 Full PDFs related to this paper . Read Paper. Download Download …
Academia.eduEURO-WABB: an EU rare diseases registry for Wolfram syndrome, …
EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alstrom syndrome and Bardet-Biedl syndrome. Amy Farmer, Segolene Ayme, Miguel Lopez de Heredia, Pietro Maffei, Susan McCafferty, Wojciech Mlynarski, Virginia Nunes, Kay Parkinson, Veronique Paquis-Flucklinger, Julia Rohayem, Richard Sinnott, Vallo Tillmann, Lisbeth Tranebaerg, Timothy G …
Findanexpert.unimelb.edu.auNew registry for rare diabetes - EURORDIS
EURO-WABB is a new project aiming to establish a registry for Alström, Wolfram and Bardet Biedl syndromes and improve diagnostics, care, knowledge and treatment. Within the EU Health Programme 2008-2013 and its call for promoting health through the creation of new registers for rare diseases, EURO-WABB is supported by the EU Directorate ...
Eurordis.orgEURO-WABB Project
The Euro-WABB project has aimed to tackle these issues. The strategic objective of the project is to support efficient diagnosis, treatment, and research for WABB diseases in Europe and this has been predominantly achieved through setting up an EU-wide registry containing anonymised clinical data on presentation history, complications, clinical investigations and molecular …
Webgate.ec.europa.euEURO-WABB - Research - Rigshospitalet
EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alström syndrome and Bardet-Biedl syndrome. Research output: Contribution to journal › Journal article › …
Research.regionh.dkEURO-WABB: An EU rare diseases registry for Wolfram syndrome, …
2013-08-27 · EURO-WABB is an international multicenter large-scale observational study capturing longitudinal clinical and outcome data for patients with WABB diagnoses. Three hundred participants will be ...
Researchgate.netlovd.euro-wabb.org
Lovd.euro-wabb.org
Lovd.euro-wabb.orghttp://www.euro-wabb.org: an EU Register for Alstrom, Bardet …
EURO-WABB is an international multicenter large-scale observational study capturing longitudinal clinical and outcome data for patients with WABB diagnoses. Three …
Researchgate.netEURO-WABB: an EU rare diseases registry for Wolfram syndrome, …
2013-08-27 · Abstract Background Wolfram, Alström and Bardet-Biedl (WABB) syndromes are rare diseases with overlapping features of multiple sensory and metabolic impairm... EURO-WABB: an EU rare diseases registry for Wolfram syndrome, Alström …
Explore.openaire.euEURO-WABB - Translation into Portuguese - examples English
Translations in context of "EURO-WABB" in English-Portuguese from Reverso Context: EURO-WABB is a new project aiming to establish a registry for Alström, Wolfram and Bardet Biedl syndromes and improve diagnostics, care, knowledge and treatment.
Context.reverso.net
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