Domain Informations
Angelmanregistry.info lookup results from whois.godaddy.com/ server:
- Domain created: 2015-09-23T09:11:35Z
- Domain updated: 2024-03-22T09:37:11Z
- Domain expires: 2030-09-23T09:11:35Z 6 Years, 144 Days left
- Website age: 8 Years, 221 Days
- Registrar Domain ID: 25100bc458764cd7b7598247edf17e70-DONUTS
- Registrar Url: http://www.godaddy.com/domains/search.aspx?ci=8990
- Registrar WHOIS Server: whois.godaddy.com/
- Registrar Abuse Contact Email: [email protected]
- Registrar Abuse Contact Phone: +1.4806242505
- Name server:
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- ns-1131.awsdns-13.org
- ns-536.awsdns-03.net
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Network
- inetnum : 99.84.0.0 - 99.84.255.255
- name : AMAZO-CF
- handle : NET-99-84-0-0-1
- status : Reallocated
- created : 1995-01-23
- changed : 2022-09-30
Owner
- organization : Amazon.com, Inc.
- handle : AMAZON-4
- address : Array,SEATTLE,WA,98101-1244,US
Abuse
- handle : AEA8-ARIN
- name : Amazon EC2 Abuse
- phone : +1-206-555-0000
- email : [email protected]
Technical support
- handle : ANO24-ARIN
- name : Amazon EC2 Network Operations
- phone : +1-206-555-0000
- email : [email protected]
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Host Informations
- IP address: 99.84.108.14
- Location: Seattle United States
- Latitude: 47.54
- Longitude: -122.3032
- Timezone: America/Los_Angeles
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Websites Listing
We found Websites Listing below when search with angelmanregistry.info on Search Engine
Contact - Global Angelman Syndrome Registry
Email. [email protected] . Providing Insight & Research into Angelman Syndrome. Creating new opportunities, insight & understanding. Access our Data Register Now. The Global Angelman Syndrome Registry is a project designed for individuals diagnosed with Angelman syndrome and empower those working towards research and treatments. ©2022 Global …
Angelmanregistry.infoHome - Global Angelman Syndrome Registry
Creating new opportunities, insight & understanding. The Global Angelman Syndrome Registry is a project designed for individuals diagnosed with Angelman syndrome and empower those working towards research and treatments. Parents and caregivers are driving the collection of data by contributing to the largest dataset on Angelman syndrome by ...
Angelmanregistry.infoAbout Us - Global Angelman Syndrome Registry
About. The Global Angelman Syndrome Registry is a project designed ultimately to benefit individuals diagnosed with Angelman syndrome and those working to create a new future. The Registry is powered by the parents and caregivers of individuals diagnosed with Angelman syndrome, driving the collection of data by answering questions on their ...
Angelmanregistry.infoData Access - Global Angelman Syndrome Registry
Requests for data go through the Data Curator to the Global Angelman Registry Governance Board. Simple descriptive statistics such as participant numbers may be easily accessible by emailing [email protected]. Requirements vary depending on the level of data access required. Use our online data access form to apply for access today.
Angelmanregistry.infoContact Registry – Angelman Syndrome Foundation
Aurora, IL 60504 Phone 800.432.6435 Email [email protected]. Connect. facebook; twitter; linkedin; instagram; pinterest; rss; youtube. The Mission. The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families …
Angelman.orgFAQs - Global Angelman Syndrome Registry
Please contact the Registry curator on [email protected] if you know of a study and/or study coordinator we should seek to collaborate with. Providing Insight & Research into Angelman Syndrome. Creating new opportunities, insight & understanding. Access our Data Register Now. The Global Angelman Syndrome Registry is a project designed for individuals …
Angelmanregistry.infoMeet The Team - Global Angelman Syndrome Registry
Professor Bellgard is the inaugural eResearch Director at Queensland University of Technology, leading the eResearch Office to work closely with researchers and external end users to understand the research question, the breadth of technical and socio-technical challenges in order to devise innovative strategies to ultimately ensure technological solutions are fit-for …
Angelmanregistry.infoGlobal Angelman Syndrome Registry - Home - Facebook
2021-12-04 · Global Angelman Syndrome Registry. 1,273 likes · 1 talking about this. The Angelman Registry is a tool to help medical professionals and researchers learn more about individuals with Angelman...
Facebook.comReceive Our Emails – Angelman Syndrome Foundation
To receive one or more of our newsletters, subscribe below! If you already receive our emails, but want to update your preferences, enter your email & name below, click Subscribe and follow the steps. Family member option: If you are a parent, caregiver or someone who is in close contact with an individual with AS, select the Family member option.
Angelman.orgContact – Angelman Today
Articles: If you would like to contribute an article of information, research, or your own experience, please email [email protected]. Marketing/Advertising: We are always looking for great products and services to help enrich the lives of individuals affected by Angelman Syndrome and their families. You may use the contact form below or contact us directly. …
Angelmantoday.comRegistry services | Alberta.ca
Registry services. Find or become a registry agent, get an Alberta ID card and become a Registries Online subscriber.
Alberta.caCollaborate with us - Global Angelman Syndrome Registry
Linkage with other datasets alleviates caregiver burden and allows for rich, complete data. Unique Identifiers allow researchers to share data specific to a study participant without exposing personally identifiable information and match participants across labs …
Angelmanregistry.infoThe Global Angelman Syndrome Registry – Angelman Today
2018-01-10 · The neurology module is difficult, whilst a lot of us have pseudo degrees in neuroscience the terminology has recently been updated, if you have issues you can contact the registry curator [email protected] (she is based in Australia so depending on the time of the day you may not get an immediate response), or talk with your health professional.
Angelmantoday.comGlobal Angelman Syndrome Registry - GUARD
Please contact the Registry Curator on [email protected] if you know of a study and/or study coordinator we should speak to to join forces. Registry Location: Australia : Registry Participation: Voluntary: Registry Contact: Registry Enquiries . E: [email protected]. Adding New Patients to Registry: Parents / caregivers of a …
Guard.org.auAngelman Syndrome Foundation – With you for the journey
2022-03-08 · Aurora, IL 60504 Phone 800.432.6435 Email [email protected]. Connect. facebook; twitter; linkedin; instagram; pinterest; rss; youtube. The Mission. The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with …
Angelman.orgGlobal Angelman Syndrome Registry - Genetic and Rare Disease …
Please contact the Registry Curator on [email protected] if you know of a study and/or study coordinator we should speak to to join forces. Registry Location: Australia: Registry Participation: Voluntary: Registry Contact: Registry Enquiries . E: [email protected]. Adding New Patients to Registry: Parents / caregivers of a …
Gardn.org.auGlobal Angelman Registry | International Angelman Day
The Angelman Registry is a tool to help medical professionals and researchers learn more about individuals with Angelman Syndrome (AS).The Registry will create new opportunities to gain insight and understanding about AS, providing an important tool for both facilitating research and enabling clinical trial sponsors to quickly identify suitable patients for each study.
Angelmanday.infoGlobal Angelman Registry (@global.angelman.registry) • …
The Angelman Registry is a tool to help medical professionals and researchers learn more about individuals with Angelman Syndrome (AS). www.angelmanregistry.info
Instagram.comGlobal Angelman Registry - Foundation For Angelman Syndrome …
The ability to integrate with existing studies will be dependant on the ethics approval obtained to collect the information and the format in which the information has been collected. Please contact the Registry curator on [email protected] if you know of a study and/or study coordinator we should seek to collaborate with.
Cureangelman.org.auGlobal Angelman Syndrome Registry - Accueil
Global Angelman Syndrome Registry. 1 280 mentions J’aime · 62 en parlent. The Angelman Registry is a tool to help medical professionals and researchers learn …
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Domains Expiration Date Updated
| Site | Provider | Expiration Date |
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