Gouldsyndromefoundation.org


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Gould syndrome foundation



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  • Domain created: 2019-09-25T17:45:04Z
  • Domain updated: 2026-03-23T01:14:44Z
  • Domain expires: 2026-09-25T17:45:04Z 0 Years, 142 Days left
  • Website age: 6 Years, 223 Days
  • Registrar Domain ID: REDACTED
  • Registrar Url: https://domains.squarespace.com
  • Registrar WHOIS Server: whois.squarespace.domains
  • Registrar Abuse Contact Email: [email protected]
  • Registrar Abuse Contact Phone: +1.6466935324
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Network
  • inetnum : 198.49.23.0 - 198.49.23.255
  • name : SQUARESPACE
  • handle : NET-198-49-23-0-1
  • status : Direct Allocation
  • created : 2012-04-26
  • changed : 2017-01-04
  • desc : https://squarespace.com
Owner
  • organization : Squarespace, Inc.
  • handle : SQUAR-30
  • address : Array,New York,NY,10014,US
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Host Informations

  • IP address: 198.49.23.144
  • Location: New York United States
  • Latitude: 40.7157
  • Longitude: -74
  • Timezone: America/New_York

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 › My sql: 3306
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 › Session Initiation Protocol (SIP): 5060
 › Virtual Network Computer display: 5900
 › X Window server: 6001
 › Webcache: 8080


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Email address with gouldsyndromefoundation.org

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Websites Listing

We found Websites Listing below when search with gouldsyndromefoundation.org on Search Engine

Donate - Gould Syndrome Foundation

Web We have a volunteer based Board of Directors, Medical and Legal Advisory Board and unpaid Staff. One hundred percent of your donation will go to funding our mission to …

Gouldsyndromefoundation.org

Gould Syndrome Foundation (COL4a1/COL4A2) - NORD …

Web Gould Syndrome Foundation (COL4a1/COL4A2) seeks to educate the community on the rare disease COL4A1 and it's subcategorical diagnosis'. We provide education, …

Rarediseases.org

Gould syndrome patient registry article - Gould Syndrome …

Web families with Gould Syndrome must have access to infantile spasms awareness and stroke education materials. The Gould Syndrome Foundation is planning several improvements …

Gouldsyndromefoundation.org

Gould Syndrome Foundation on Twitter

Web Apr 13, 2020  · “It’s a very complex #RareDisease , on the patient side, some #stroke have #congenitalcataracts #micropthelmia #porencephaly #epilepsy #cvi …

Twitter.com

Gould Syndrome Foundation’s Tweets - twitter.com

Web #GouldSyndromeFoundation is a parent lead, #patientadvocacy #nonprofit. Global Health Registry of #COL4A1 #COL4A2 #ECM #stroke #epilepsy #genetics #raredisease

Twitter.com

Gould Syndrome Foundation Col4a1/Col4a2 - Facebook

Web Gould Syndrome Foundation Col4a1/Col4a2, Cleveland, Ohio. 507 likes · 1 talking about this. https://www.gouldsyndrome.org/about-us Gould Syndrome Foundation Col4a1/Col4a2

Facebook.com

Gould Syndrome Foundation - Overview, News & Competitors

Web Gould Syndrome Foundation. Non-Profit & Charitable Organizations · United States · <25 Employees . Gould Syndrome Foundation exists to provide hope and help to children …

Zoominfo.com

#gouldsyndromefoundation hashtag on Twitter

Web See Tweets about #gouldsyndromefoundation on Twitter. See what people are saying and join the conversation.

Twitter.com

Gould Syndrome Foundation Col4a1/Col4a2 - Facebook

Web See more of Gould Syndrome Foundation Col4a1/Col4a2 on Facebook. Log In. Forgot account? or. Create new account. Not now. Related Pages. Autumn Ramey, Harp. …

Facebook.com

Gould Syndrome Foundation - eurordis.org

Web About our priorities. Patients first - our strategy and activities are centred around advocating for, empowering and partnering with people living with a rare disease.

Eurordis.org

Genetic conditions support - Genetic Alliance

Web From the Gould Syndrome Foundation web site: Gould Syndrome is a rare, genetic, multi-system disorder. Gould Syndrome is often characterized by abnormal blood vessels in …

Geneticalliance.org.au

Gould Syndrome Foundation Col4a1/Col4a2 - Facebook

Web See more of Gould Syndrome Foundation Col4a1/Col4a2 on Facebook. Log In. Forgot account? or. Create new account. Not now. Related Pages. Kayci's Kreations. Baby …

Facebook.com

Gould Syndrome Foundation Col4a1/Col4a2 - Facebook

Web Gould Syndrome Awareness Day in tomorrow April 12th!!! Please see our preliminary data from the global registry with 61 participants....

Facebook.com


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